The disease is SMA (Spinal Muscular Atrophy). Any help is appreciated. Thanks
What organization is this?
My godson has SMA.
Families of SMA. Looks like the biggest researcher of SMA cures.http://www.fsma.org/
Wish I could find an alternative to share with the friend so they could raise funds for another organization.
Here is the bad newshttp://www.all.org/charities/index/
I would suggest you contact both ALL (American Life League) and Human Life International. If they do not know who is doing moral research, they may be able to point you in the right direction. And if NO one is doing moral research, then maybe it is time to use that fund raising ability to start a foundation!